Fighting Huntington’s Disease

I urge my Congressional representative to cosponsor the Huntington’s Disease Parity Act of 2013 (HR 1015) and to ask my senators to cosponsor the Senate companion, S 723.

If passed, the Huntington’s Disease Parity Act would make it easier for people with HD to receive Social Security Disability and Medicare Benefits.

Huntington’s disease is a hereditary, degenerative brain disorder for which there is no effective treatment or cure. HD slowly diminishes a person’s ability to walk, talk and reason. Eventually, every person with HD becomes totally dependent upon others for care. This disease profoundly affects the lives of entire families — emotionally, socially and economically.

By cosponsoring the Huntington’s Disease Parity Act of 2013, members of Congress can show their support for the almost 1 million Americans who are touched by this terrible disease.

This story was originally published September 18, 2014 at 7:13 PM with the headline "Fighting Huntington’s Disease."