Family of baby with rare genetic disorder in need of some help this holiday season
Baby JJ, age 20-months, suffers from a rare genetic disorder called x-linked myotubular myopathy. JJ requires around the clock care at home. His mother had to quit her job as a nurse to provide the best home care for him. The family was just getting by until Hurricane Irma blew through South Florida. Now they are in need of some help.
Katherine Sanchez, a blind 15-year-old, and her mother, Katia Triana, moved to Miami from Cuba last year to give Katherine a better opportunity to get treatment and an education. But the two live off a disability check and are asking for a laptop for Katherine and other furniture.
Here's how the Miami Herald Wish Book program helped South Florida families in need last year. We're gearing up for the 2017 Wish Book season, and asking our readers to make a difference in a neighbor's life.
Frances Alvarez had her Wish Book wish come true when a generous donor gave over $3,000 to purchase a very special computer for the her, to help her see and hear printed material. Alvarez, almost completely blind since the age of 10, can not see well enough to read anything on her own and was very reliant on her parents.
Caring for Javier Gonzalez, a 9-year-old boy with cerebral palsy, is a full-time job for his stepmother, Arlin Perez. The family, which lives paycheck-to-paycheck, wants to renovate their bathroom to make it easier to care for Javi, but doesn’t have the money to do it.
A look at how the Miami Herald Wish Book program helped South Florida families in need last year. We're gearing up for the 2017 Wish Book season, and asking our readers to make a difference in a neighbor's life. Go to http://hrld.us/wishbook for more information on how to donate.
On the road to recovery, FIU student Jazzmin Peluchette has slowly regained vision and mobility following a severe seizure related to her rare autoimmune disorder. Peluchette was featured in the 2013 Wish Book project.
For 40 years Jairo Pinill has been been making low-budget horror and fantasy films in Colombia that have been panned by critics but embraced by his legion of fans. Now, as he prepares to receive a lifetime achievement award, he's also trying to make the country's first 3D movie.