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  • Esta niña tiene convulsiones que amenazan su vida. Su único apoyo son su mamá y sus dos hermanas pequeñas.

    Cada vez que la enfermedad la golpea - a veces mientras está de pie, y cae al suelo repentinamente - el reloj comienza de nuevo. Usa un casco rosado todo el tiempo porque nunca sabe en qué momento va sucumbir de nuevo.

Cada vez que la enfermedad la golpea - a veces mientras está de pie, y cae al suelo repentinamente - el reloj comienza de nuevo. Usa un casco rosado todo el tiempo porque nunca sabe en qué momento va sucumbir de nuevo. Pedro Portal el Nuevo Herald
Cada vez que la enfermedad la golpea - a veces mientras está de pie, y cae al suelo repentinamente - el reloj comienza de nuevo. Usa un casco rosado todo el tiempo porque nunca sabe en qué momento va sucumbir de nuevo. Pedro Portal el Nuevo Herald

She has life-threatening seizures. Her two little sisters and mom are her only support.

November 28, 2016 10:23 PM

UPDATED November 29, 2016 07:16 PM

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  • Family of baby with rare genetic disorder is in need of some help this holiday season

    Family of baby with rare genetic disorder in need of some help this holiday season Baby JJ, age 20-months, suffers from a rare genetic disorder called x-linked myotubular myopathy. JJ requires around the clock care at home. His mother had to quit her job as a nurse to provide the best home care for him. The family was just getting by until Hurricane Irma blew through South Florida. Now they are in need of some help.