Fred Grimm’s Sept. 9 column, Profits trump the needs of sick kids, about the care being provided to children in pediatric nursing homes is misguided and another attempt to demonize these facilities.
There are only six out of 685 nursing homes in Florida which specialize in serving children and young adults. The unfortunate reality is that these pediatric facilities are the safety net for children who cannot be cared for at home because either their medical needs are too complex or they have no family to rely on.
Fragile doesn’t begin to describe their care needs — they require ventilators, feeding tubes; they have traumatic brain injuries or may even be comatose. The staff dedicated to providing their 24-hour care is specifically trained in pediatrics including registered nurses, physicians, respiratory therapists, speech therapists, dieticians and social workers.
The reality is that good care costs money, as do the support services to ensure these children are given a nurturing and home-like environment. Medicaid doesn’t come close to covering the costs for 24-hour pulse and oxygen monitoring, specialized wheelchairs, and off-campus outings with all the necessary staff so they can experience what it’s like to be a kid. Pediatric nursing homes have a very specific set of requirements and regulations to care for children 21 and under. The areas where these children live are separate and secure from the geriatric residents; however, they are designed specifically for children.
You’ll find handicap-accessible playgrounds, toys, and a brightly-colored, kid-friendly living environment. Education is an important component, and through collaboration among the families, medical team and school system, each child’s schooling needs are met. You’ll also find more than twice the number of staffing hours per child than that which is required for seniors.
Nursing homes have always been supportive of every individual receiving care in the safest and least restrictive settings, and we actively support programs that keep or safely transition these fragile children to a home and community-based setting.
The unfortunate reality is that the Department of Justice report, and Grimm’s column, only focus on the small fraction of children who are blessed to have a strong family support network. Many of these kids are there because someone in their life failed them, and their health deteriorated as a result. But just like they would with their own children, the staff working in these nursing homes experience joy and pride in their hearts when they see them thrive and, if they have somewhere safe to go, can return home.
J. Emmett Reed, executive director, Florida Health Care Association, Tallahassee